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Central Registry of Rare Diseases (CRRD), Data Quality Benchmark Report (1st Edition 2015–2025)

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Abstract
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Date
2026-04-27
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Publication type
Sci. report, recommendat°, guidance doc., directive, monograph
Collections
Scientific reports, recommendations, guidance documents, directives, monographs
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crrd_dq_benchmark_part1_en.pdf
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Keywords
epidemiology, HEALTH POLICY, Health systems, ORPHAcodes, population-based registry, Rare diseases
Citation
URI
https://hdl.handle.net/20.500.14493/12764
Topic(s)
public health #22444#
Rare diseases #343#
Related project
CRRD #1000730#
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