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Do international recommendations meet citizens’ values and needs regarding genomic information?

Mayeur, Chloé
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Abstract

Genomics will impact the lives of many citizens, as it grows more and more important and even spreads beyond the scope of healthcare. Recommendations of international professional societies related to genomics, which are mainly based on expert opinion, should be informed by fundamental values and needs of well-informed citizens.

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Date
2019-07-01
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European Society of Human Genetics
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Scientific poster, presentation or proceeding
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Keywords
genomics; public engagement; citizen forum; privacy; discrimination; autonomy
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