Central Registry of Rare Diseases (CRRD) - Data Collection Report (1st Edition 2015–2025)

Item

Central Registry of Rare Diseases (CRRD) - Data Collection Report (1st Edition 2015–2025)

Dhondt, Evy
;
Jirari, Amina

Date

2026-02-27

Publisher

Sciensano

Publication type

Sci. report, recommendation, guidance doc., directive, monograph

Collections

Scientific reports, recommendations, guidance documents, directives, monographs

Show all metadata

Files

crrd_datacollection_report_1stedition_eng.pdf

Adobe PDF, 3.88 MB

Keywords

epidemiology, HEALTH POLICY, Health systems, ORPHAcodes, population-based registry, Rare diseases

URI

https://hdl.handle.net/20.500.14493/5089

Topic(s)

public health #22444#
Rare diseases #343#

Related project

CRRD #1000730#